Some of you know what I am talking about when I mention the whole "last pregnancy" stuff, but some of you don't know me much at all and are probably wondering what the heck I am talking about. This post is a refresher course for those of you that remember going thru it all with me and background info for those that don't know me well at all. I think that I am going to start from the beginning of my pregnancy with Kennedy so you know exactly how things came to be. I am going to warn you that this may be a long post, but at least I won't have to go into all the details again. You may also want to wait until you have LOTS of time to read it. And, I am apologizing now if my spelling or grammar isn't great (I just don't have time to edit this after it took so long to write).
When I got pregnant with Kennedy, everything was seemingly normal. I was a little bit sicker with Kennedy than with Kylie, but not too bad. I went for my normal blood work some where between 10-12 weeks. After the blood work, I had my normal 12 week appointment and the nurse practitioner (NP) told me that the tests came back suggesting that I had an RH antibody. The confusing thing about that is that I am A+ so if I had an RH antibody, the antibody would be attacking my own blood supply. That news started off the confusion and a little bit of a scare. The NP was unable to explain what was going on (even after consulting with the docs) so they had contacted the specialist. He suggested that I go have another test done for something more specific called a titer test. I went for the test and the results were sent to the specialist. He said that the lab didn't test the right thing so I had to go back and have the blood drawn again (this time he would take care of writing up the paperwork). After the 3rd blood test, I had to schedule an appointment with the specialist so that he could explain to us what was going on. We met with the specialist and he explained to us that there are a million "markers" on each individuals blood cells. Not surprising when you consider how incredible our God is and how complex & different each person is. Well, it just so happens that my blood lacks the FYA "marker" (meaning I am FYA-). Dan, however, is FYA+. Well, during delivery of Kylie, some of her blood got into my bloodstream and she happens to have her daddy's blood. After my body recognized the foreign blood, it created an antibody which would attack that specific blood type. So, as you can tell it was not a problem during my pregnancy with Kylie and it is something that only shows up in blood work (it's not something that affects me at all). He said the easy way to explain is to say that it is similar to the RH thing, except with RH they have a shot called Rhogam, which stops the antibody from attacking the baby. With FYA (also known as the Duffy antibody), they do not have an "FYAgam." And because they don't have the shot to stop the antibody from crossing over into the baby's bloodstream and attacking the blood supply, they just have to monitor certain levels to see how "badly" the baby's blood supply is being broken down. The can monitor the levels only by doing an amniocentesis (amnio). The game plan is to do the 1st amnio around 20-22 weeks. At the first one, they do the amnio and also take blood from both Dan and myself. Then they send all the samples to a genetic testing facility in New Mexico where they do their thing. When they are done, they send it to Wisconsin to another facility which does their thing. The test results confirm that Dan truly was FYA+ and that I truly was FYA- and with Kennedy it showed that she also had her daddy's blood. One of the cool things about that 1st amnio was that our DNA was flying all over the USA. The other cool thing is that we had indisputable evidence that our baby was a girl (no denying DNA). And some of you may remember the ongoing joke that a good friend of ours was the father of Kylie and Kennedy, so the tests also cleared up that little joke. :) Since the original game plan was to have the 1st amnio done and then, depending on results, have an amnio done every 4 weeks, we had set up the 2nd amnio for 4 weeks after the 1st one while we were at the 1st appointment. At the 2nd amnio, the specialist explained the game plan again now that we knew for sure we would have to go thru the whole process. We did the 2nd amnio and those results go to a lab just down the street from the doctors office so if I had the amnio in the morning, I would have results by that afternoon. This is where things got a little more nerve wrecking. After the results came back from the 2nd amnio, the specialist called and said that he wanted to see me in 2 weeks instead of 4 weeks because the levels were higher than "normal" for this type of situation. So, I was back for another amnio at 28 weeks. The doctor showed me the chart that they use and where Kennedy's levels were at and explained that they have to keep a closer watch on those levels since there were in a more dangerous range. Of course he wouldn't tell me before I left whether or not to set up an appointment for 2 weeks or 4 weeks. And so the appointments went...I go in have the amnio, ask the doctor what was going on, and he would just tell me that we would wait until these results come back and then we'll go from there. Of course the results would come in the afternoon and his nurse would call and tell me that I needed to set up an appointment for 2 weeks or whatever the doctor decided. So, I went for an amnio at 30 weeks, 32 weeks, and then I was lucky enough to go 3 weeks between amnios and I was in at 35 weeks. Of course, from the beginning the original game plan was every 4 weeks with the last one being at 36 weeks to test the levels, but more importantly to test for the baby's lung function to confirm that the baby was ready to be delivered. And then, shortly after the 36 weeks I was going to deliver.
I'm going to have to back track a little because during the whole blur of amnios (and of course I had to my other normal dr. checks), there were alot of discussions with the specialist about possibilities. At one point, he suggested that if things get too bad early on, there is always the possibility that we would need to do an in-utero blood transfusion. So, in the back of my mind was always what if, what does that mean for our baby? Fortunately, God spared us that experience. The other question I had was, what would be the problems with a baby born at 36 weeks? That is basically 4 weeks preemie. Would we have to deliver in GR? Would she be in the neo-natal unit? So many questions and never any answers other than, here are the results and the doctor would like to see you in 2 weeks and we'll know better then what to do from there. The worse part of the whole thing was the unknown. I can handle the amnios - I just hate to wait. I am sure that I mentioned before that I am not a patient person - God knew that and I think this was his way of FORCING me to submit and be patient. I'm gonna break here for another little side note. I said that the amnios were not all that bad as far as the pain goes. Well, I should clarify that all but one of the amnios was very tolerable. There was one time (I think it was the 3rd or 4th) when the doctor was pushing very hard and wasn't getting the needle to go thru. He was pushing so hard that it actually bent the needle. I wish now that I would have asked to keep that needle as a keepsake because it would be kinda cool. I guess they had gotten a new needle manufacturer and the needles were not as sharp as the others. The doctor was noticeably very upset and thankfully they had a needle left from the other manufacturer. The second time was a charm, but I did have to lay on that bed for a little longer than normal because I felt a little woozy.
As I mentioned before, the appointments were getting crazy. I had to go to GR every 2 weeks for amnios. I had my regular appointments at my doctor's office in Holland. And to add more to the mix, from 32-36 weeks I had to go to my doctors office 2-3 times per week for non-stress tests. I got to sit in a room with a fetal monitor hooked up and keep track of the baby's movements for at least 15 minutes. Of course Kennedy was not a very active baby so it always took more than 15 minutes. They were never worried about her not being very active, but they still wanted me to come in at least 2-3 times per week. Now you can really understand why I hate doctor appointments so much (or at least I get sick of them quickly).
Well, we did the final amnio at a little over 36 weeks on a Thursday.The results came back fine, which was good, because I was ready for it to be all over and I had already schedule the c-section for the next day. Of course I could have cancelled it if things didn't look good, but I was praying that God would see to it that we could be done with the whole pregnancy thing. We delivered Kennedy at 8:40 on Friday morning. Everything went just fine. We did have a little scare because it seemed like it took forever for Kennedy to cry. From the time she came out to the time she cried seemed like an eternity. At our final amnio, the doctor predicted that Kennedy would be about 5 lbs, but he cautioned us that at that early, it is more likely to calculate higher rather than lower. So, when the doctors weighed her and said she was 5 lbs 7 oz, I actually said WOOHOOO with an incredible amount of excitement. The whole room was dead silent for a few moments. I think that they all thought I was the most crazy woman on the planet. I mean seriously, who gets excited about a 5 lb 7 oz baby? I'll tell you who does. Someone who was only hoping that she would be AT LEAST 5 lbs. That extra 7 oz was huge. Well, we had no idea what would be in store for us after delivery. Things were looking alright for the first day, she was nursing alright and everything seemed to be going fine. The next day was different. Later in the day we were told that she had to be put under the bilirubin lights because her bilirubin levels were too high. Which of course is the result of the antibody attacking her red blood cells and breaking them down causing them to become a toxin in her little body. The bilirubin lights help break down those toxins and allow them to be excreted. Of course she had to be under the lights at all times unless she was feeding or her diaper was being changed. So, I got to hold her every 3 hours while I nursed, but other than that there was very little contact. And no one else in the family could hold her unless they were helping me nurse by bringing her to me from the bassinet or while they changed her diaper. And with such a close a family, it was very difficult on everyone. And again, we had no idea how long she had to be under the lights. They would prick her foot for blood tests 2 or 3 times a day to see how things were going. That started on Saturday afternoon and we ended up staying until Wednesday. Of course the insurance company would only pay for my room thru Monday night so on Tuesday night I had to spend the night in a little room just off the nursery. And had I known, I probably would have opted to sleep on the couch in the lounge behind the nursery every night because it was far more comfortable than the hospital bed. Wednesday morning when the pediatrician came in and looked at the labs, he said that everything was looking good enough for us to go home. But we had to go back on Friday to have her tested again to make sure that things were still looking OK. And for the 1st year of her life she had to be tested a few more times to make sure that there were no longer lasting affects or anemia. She is still a tiny little thing, but after her 1 year appointment the doctor said that the results were normal and that we probably won't have to do anymore blood tests related to the whole anemia issue. Praise God that in the end everything has turned out just fine. And I even learned a lesson or two about life & God.
Well, that is the long version of the story. I am sure that I have left some things out, but now you all know what is going on and what I am preparing for. If you have questions about anything, please feel free to ask me. I will answer them the best way I know how. It's kinda funny that I have helped to educate some of the staff at my doctor's office (and I am not sure that I completely understand all the medical stuff). They may not see anything like this again for quite some time, but I am sure that it will make more sense to them when they do hear of another situation like this.
I gotta get back to work now so that I can get outta here on time. I'm feeling pretty crummy and hope to be able to leave on time so that I can run my errands and head home to take a nap. I hope you all have a good weekend!